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Comunidad FQ

An online community for people with Cystic Fibrosis and their families

Community
Strengthen my relationships
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This is a Spanish-speaking community.

Comunidad FQ is an online community created to bring together people living with Cystic Fibrosis, parents, caregivers, and healthcare professionals in a trusted space for learning, connection, and support. Developed through a collaboration between Agenda28 and the Asociación Mexicana de Fibrosis Quística (AMFQ), the platform provides access to expert-led talks, educational programs, practical resources, community events, and opportunities to connect with others who understand the realities of living with Cystic Fibrosis.

Members can participate in specialized initiatives such as educational webinars, wellbeing challenges focused on healthy habits, access the Parents’ Manual—a practical guide for understanding and managing Cystic Fibrosis—and explore a growing library of trusted, evidence-based resources. More than an information hub, Comunidad FQ is a space where patients and families can learn, share experiences, find encouragement, and become part of a community that grows together.

Outcomes

  • Gain practical tools to navigate life with Cystic Fibrosis
  • Access learning, wellbeing, & personal growth opportunities
  • Stay connected with events, programs, and trusted resources

What's included?

  • Expert Talks & Live Events

    Attend webinars, and conversations with healthcare professionals, guest speakers, and members of the Cystic Fibrosis community.

  • Programs & Challenges

    Participate in exclusive initiatives focused on wellbeing, healthy habits, and other topics designed specifically for people living with Cystic Fibrosis and their families.

  • Resource Library

    Explore a growing collection of trusted, evidence-based resources, including educational guides, practical tools, articles, podcast episodes, and more.

Who is this for?

  • Parents, caregivers, and family members of individuals living with Cystic Fibrosis
  • Healthcare professionals dedicated to respiratory and genetic care.
  • Pulmonologists, psychologists, physical therapists, nutritionists, and other specialists supporting people with Fibrosis Quística.

About the creator

Asociación Mexicana de Fibrosis Quística (AMFQ) picture

Asociación Mexicana de Fibrosis Quística (AMFQ)

Nonprofit Organization Building a Better Future for People Living with Cystic Fibrosis in Mexico

Founded in 1982, the Mexican Cystic Fibrosis Association (AMFQ) is a nonprofit organization dedicated to improving the quality of life and life expectancy of people living with Cystic Fibrosis in Mexico. Through advocacy, education, scientific resear...